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The first time I knew that something wasn’t right was when a friend of mine was in the emergency room and had to tell me her son had a large number of seizures. I could feel myself sinking into the couch and then realizing that this child had something important to say—just not in a voice she could understand.

So I asked her if she knew what she was talking about, just like any other mother might with a newborn. My friend told me that her son was having a hard time sleeping, and they were both experiencing trouble with crying as well. She told me she had seen it before in her son: a lot of nighttime seizures. He was having them during the day, too, but he wouldn’t come to the hospital with them at night.

This gave me a new perspective. I had watched my friend struggle with the same condition myself. And while she had never seen it myself, she was right about the frequency. I thought I’d ask my colleagues and other parents if they could also tell me the specifics of their son’s nighttime seizures.

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Before I went into interviews where parents shared their medical histories and histories of seizures, I wanted to know the details of the seizures my own son was experiencing at night, too. I’ve always loved research, but I worried that I would get sidetracked by my experience of the condition.

When I got back home from the hospital, the first thing I did was find his doctor’s office. I showed up to the morning exam that was scheduled in the lobby and learned his medical history.

He was 36 years old and was working on a degree in management in sales and marketing with a focus in education. He had just returned from a year abroad and had come back to the U.S.

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